If the drug works, do I keep getting it?

Sometimes yes, through what is called continued access, and sometimes no. It depends on the trial and on who is paying. This is one of the most painful surprises for people who do not ask early.

Ask before you sign, not at the end: if this helps me, what happens on the day the trial closes? Get the answer written into your notes.

Written by two physicians. Checked against patient information from the US National Cancer Institute and Cancer Research UK.